SUPPORT GROUPS:
Anencephaly Support Foundation (ASF). ~ for parents who choose to go to term after learning their baby has serious birth defects
CHASER, Inc. ~ Congenital Heart Anomalies, Support, Education and Resources
CHERUBS ~ Association of Congenital Diaphragmatic Hernia Research, Advocacy, and Support
Down Syndrome WWW Page ~ based on the Down Syndrome Listserv with lots of FAQ
Family Village ~ a global community that integrates information, resources, and communication opportunities on the Internet for persons with mental retardation and other disabilities, their families, and those that provide them services and supports
Fraxa Research Foundation ~ Fragile X Syndrome info
Genetic Conditions/Rare Conditions Support Groups & Information ~ info on specific diseases and disorders
Our Kids ~ A web page devoted to raising kids with special needs
Rare Genetic Diseases in Children ~ a good starting point for locating internet resources
SOFT ~ Support Organization for Trisomy 18, 13 and other disorders
Hospice Hands ~ good info plus a chat room and message board
Hospice Net ~ lots of wonderful information on hospice and grief
Hospice Web ~ good hospice information and directory of hospices all over the world
National Hospice Organization ~ a wonderful section on hospice FAQ (frequently asked questions)
Hannah's Prayer offers "Christian
Support for Fertility Challenges" including infertility or the death of
a baby at any time from conception through early infancy. This
international support network provides a free (donation supported)
quarterly newsletter, local care/support chapters and extensive internet
resources including an email pals program and live chat room.
Hygeia: An Online Journal for Pregnancy and Neonatal Loss
MEND ~ Mothers Enduring Neonatal Death
Mothers In Sympathy and Support (MISS) ~ dedicated to supporting parents one to one after the death of an infant or young child
A Place to Remember~ support materials and resources for those who have been touched by a crisis in pregnancy or the death of a baby
National SHARE Office - SHARE: Pregnancy & Infant Loss Support, Inc
SANDS - Stillbirth and Neonatal Death Support
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